or give by standing order

help & information for parents


Click through to this section to see more about:
  • Help with money and benefits
  • Information about clinical trials
  • Lots of information about neuroblastoma
  • Talk to other parents and get support
> click here to get the help and information you need   
 

sign up to our mailing list

Boxes with an asterisk * next to them are required items

Keep up to date on the latest news and events

Submit 



what we do

The Neuroblastoma Alliance UK helps children and families affected by neuroblastoma by providing financial assistance for children's treatment; we support families affected by the disease and fund research.

We are here to help parents, families, friends and communities raise funds to support the treatment of children suffering from the disease.  

Please join us. Help us beat childhood cancer.

Every week in the UK 2 children (around a hundred children a year) are diagnosed with neuroblastoma. The prognosis for babies and children affected by neuroblastoma varies greatly. Unfortunately the largest group of patients fall into the 'high-risk' category where despite intensive treatment, the majority are not cured.


Children with advanced neuroblastoma can receive chemotherapy, surgery, radiation therapy, stem cell transplant, and immunotherapy. Specialists in America and Europe are working together, sharing information and trialling different treatments in different countries. A range of different treatments using special antibodies are being trialled in Europe—including the UK—and the USA.

 

The criteria for participation in these trials vary to some extent, which is why some children have to travel to America or Germany. In addition, not all treatments are available in this country. The Neuroblastoma Alliance funds their treatment abroad which is why we need your support. 

 

If you are the parent of a child that has been diagnosed with neuroblastoma and would like to find out if we can help you, please get in touch. You can contact us by:

Telephone   020 8203 0100
Fax                084 4774 6407

In writing to:  

Alison Moy, Chief Executive
Neuroblastoma Children's Cancer Alliance
3-4 Sentinel Square
Brent Street
London NW4 2EL

-or by using the form below.

Ultimately, we want to improve the outcome for all children with neuroblastoma.

Please, please join us. Help us beat childhood cancer.

In April 2006 the 2Simple Trust charity was set up to help Jack Brown who needed funds for his neuroblastoma treatment in America. More families who needed help contacted the charity, and over the following years the charity grew to support more children with neuroblastoma.

 

This year, the 2Simple Trust (the charity that grants for children with neuroblastoma have come from) is moving forward as the Neuroblastoma Children's Cancer Alliance. We have three members of staff, a chief executive, fundraising coordinator and an administrator. There are four trustees. We work closely with an active Parents' Group, who together, will help us to achieve the charity's aims.

 

We feel the new name better reflects our mission and our work. We are an alliance of parents and communities who want to improve the outcome for all children with neuroblastoma.

 

Please contact us if your child has neuroblastoma and you need help. 
 

 

If you want to raise funds for your child's neuroblastoma treatment abroad, there are good reasons for choosing a well-established charity like the Neuroblastoma Alliance UK to run the charity appeal for funds. 

  • You get access to a network of families who are going through similar issues and who will understand what you are experiencing. We support all families affected by neuroblastoma, including those that have lost a child to the illness.
  • As a registered charity, we can claim Gift Aid on donations made to children's appeals. This means that for every £10 donated, the UK government gives us an additional £2.50.
  • You, your friends and people who want to support your child in your community, get professional fundraising support, guidance and resources. As well as helping with collection boxes, posters, leaflets, sponsorship forms, t-shirts and running vests, setting up Virgin Money or Just Giving pages, the Neuroblastoma Alliance has a full-time fundraising co-ordinator who will support your fundraising efforts.
  • We write promptly - within 5 working days - to everyone who donates to a child's appeal to say thank you. We keep a proper, auditable record of all the funds raised for each child’s appeal.  We also send our parents a detailed monthly income report so that families can keep tabs on all the money that has been raised for their child's appeal from every source.  
  • We can help you publicise your child's story in the media. We offer this service because we recognise that parents whose children have been diagnosed with neuroblastoma may need comprehensive media support to minimise press intrusion. Our PR acts as initial point of contact for all media with support on hand during interviews. 
  • We hold regular events and meetings for parents, giving you an opportunity to meet other families affected by neuroblastoma and learn more about the latest research and treatment into the disease.
  • We are able to launch a public appeal when you have treatment aim for your child. 
  • If you have started an appeal with another charity but now wish to seek help from the Neuroblastoma Alliance UK, we would be pleased to consider your request for support. Should the Trustees agree to help, we would ask that you have just one public appeal with us. We ask you to do this as the feedback we have received from a range of sources shows us that the public is confused to see the same appeal with two different charities. Having one public appeal also means we can support your fundraising and carry out press and PR work more effectively. 
  • If you have raised funds from the public for your child’s treatment costs with another charity, we would ask you to arrange for that money to be paid over to the hospital where your child receives treatment. 
  • The charity was established in 2006 as the 2Simple Trust. Since then we have helped to fund treatment for 17 children abroad. This is more than any other neuroblastoma charity in the UK.
  • The charity has an established board of trustees that includes a parent representative, a paediatric oncologist and other professionals. You can see Charity Commission details of the 2Simple Trust governance and accounting records and the Neuroblastoma Alliance UK by clicking the links. Alternatively visit www.charity-commission.gov.uk and search under our current registration number (1135601) and the 2Simple Trust registration number (1113954) to find out more.


 

 

contact us for help

Boxes with an asterisk * next to them are required items

Name *
Email address *
Your telephone number
Nature of your enquiry *
Additional information
Captcha code Listen to the captcha Click the speaker to listen to the code (Quicktime required). Click the image to change the code
Enter Code:  



Copyright 2011 Neuroblastoma Alliance   Sitemap