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Children and parents from Australia, Switzerland, Germany, Holland and the UK took part in the Parent Education Neuroblastoma Conference on Saturday 6 October. The conference was free to attend, and was organised and facilitated by the American Children’s Neuroblastoma Cancer Foundation and the Neuroblastoma Alliance UK.
The education event was the UK's first ever conference that gave parents the opportunity to interact with the world’s leading neuroblastoma researchers and clinical oncologists and to have their questions about current neuroblastoma treatments and trials answered.
The format of the day was presentations followed by questions and answer sessions. The day ended with an open forum, where questions submitted by parents throughout the day will be discussed by the panel of international neuroblastoma experts.
We filmed the day so that people who were unable to attend can still see all the presentations and Q & A's. As soon as we can, we will upload links to the films.
We will also upload all the feedback parents gave us from the survey forms.
With very grateful thanks to our speakers:
Paediatric Oncologist and Professor of Haemotology and Oncology in Paediatrics medical director of the same department in the Clinic of Child and Adolescent Medicine. Prior to his work at Tübingen he spent five years as Head of Stem Cell Transplantation at St. Jude Children's Hospital in the USA. Much of his work has focused on stem cell transplantation and the role Natural Killer Cells. Prof Handgretinger has researched and worked with Natural Killer cells for twenty years.
Donna is a Pediatric Oncology Research Advocate who is Co-Director of Research Programs for Solving Kids' Cancer, and writes for the NB Globe website which relays research news of interest to parents of children with neuroblastoma. This information resource reports on published studies, meetings and clinical trials.
Dr Maris is the Giulio D'Angio Chair in Neuroblastoma Research; Director, Center for Childhood Cancer Research and Professor of Pediatrics, University of Pennsylvania School of Medicine.
Dr Park works out of Seattle Children’s Hospital and is associate professor in pediatrics at the University of Washington School of Medicine; associate in the Clinical Research Division at Fred Hutchinson Cancer Research Center and director of the pediatric hematology-oncology fellowship at the University of Washington. Dr Park is an active member of the Children’s
Oncology Group Consortium (COG) and as vice chair of the COG Neuroblastoma Scientific Committee provides leadership for the development of neuroblastoma clinical research within the consortium.
Professor Pearson is Cancer Research UK Professor of Paediatric Oncology and Co-Chair of the International Neuroblastoma Risk Group Task Force with Dr Sue Cohn. His research focuses on improving the outcome of children with poor prognosis cancers, such as neuroblastoma, by introducing into the clinic new anti-cancer drugs, underpinned by strong pre-clinical and clinical research. He has a strong interest in neuroblastoma and the development of novel therapeutics for high risk neuroblastoma.
Dr Sholler is Co-Director of the Pediatric Oncology Program, Associate Professor in the Center for Cancer Genomics and Quantitative Biology, and Head of the Laboratory of Neuroblastoma Translational Research. She is jointly appointed as the director of the Innovative Therapeutics Clinic in the Division of Pediatric Oncology. Dr Sholler is chair of the Neuroblastoma and Medulloblastoma Translational Research Consortium and is a guest researcher within the Pediatric Oncology Branch at the National Cancer Institute.
Dr Lieve Tytgat MD is a PhD pediatric oncologist whose area of research is translational medicine; the use of RQ-PCR as technique to measure minimal residual disease; the use of MIBG scans to understand more about patterns of metastasis in high risk neuroblastoma; and MIBG therapy in high-risk neuroblastoma. Colleague of Dr Huib Caron, professor and head of the Department of Pediatric Oncology, whose work focuses on improving the cure rates for children with cancer by developing new treatments and better risk stratification of current treatments, reducing side-effects for survivors by maximising the evidence-base for treatment decisions and guidelines for early detection and intervention.
This education event for families was funded by the Neuroblastoma Alliance UK using money raised for the Niamh's Next Step appeal.